Saturday, March 26, 2011

Elusive Butterfly ~ Bob Lind

"Across my dreams, with nets of wonder ... I chase the bright, elusive butterfly of love ..."
Sad today because we have lost yet another beautiful butterfly to blood cancer. She was one of the nearly 400 we lose everyday worldwide to leukemia and blood cancers, all of whom are beautiful butterflies fighting to fly. She was amazing ... a true patriot. Geraldine Ferraro, you don't have to fight to fly anymore ... now you soar with the angels.

Here's the thing .. together, we can find a cure for these wretched diseases. It will take time and money. Will you help? Visit Jeffrey's Voice and help us find a cure.

Friday, March 25, 2011

Rock and Roll Baby ~ The Stylistics

"Tootsie roll soul and little white shoes, Mama's (sic) sure proud of her little, bitty Rock and Roll Baby, singing at the age of two ... he can barely talk but he sure knows how to sing the blues."
Jeffrey and Brian have an older brother, Allyn. He is nine years older than Jeff, and ten years older than Brian, and he is my original "Rock and Roll Baby"!!!! He was dubbed that by my next door neighbor at the time, because he so loved to sing and dance ... even before he could walk and talk. He loved the "oldies", but he really liked disco, too, so he was also known as the "Disco Baby". In fact, when Allyn was about six months old, there was a disco show that came on television one night a week, and he was fascinated by it. You have to be pretty old like me to remember it, but I think it was called "Dance Fever" hosted by Denny something-or-other. It was a disco dance competition, but no celebrities or pros, just everyday people doing their disco thing. Allyn would sit in his little walker and bounce to the music, trying to sing the songs. He would laugh and clap and then cry when the show ended!

He was a "victim" of my singing, just like his brothers, except that, unlike Jeff and Brian who quit singing with me when they were about 9 and 10, Allyn sang with me until he reached the teenage years, when he decided he really didn't like to do much of anything with his Mom, whom he found to be "totally out of touch" with the world. Anyway, before then, Allyn always slept with the radio on. I would put him to bed, turn his radio on, kiss him and tell him goodnight. But, he did NOT go right to sleep! I would peek in on him, and he would usually be standing in his crib, dancing and singing to the music. If a song played that both of us especially liked, he would call me so that we could sing and dance together with the radio. We loved that!

When his brothers were born, Allyn would sing to them, too. He knew all of the rock and roll lullabyes that calmed them both, so if I was travelling, he would fill in for me. He was so very proud and excited to have his brothers, as he had been an "only child" for quite a long time. He loved to play with them, but he also loved to bedevil them, cause them to get into trouble, and make them do things that both he and they wished later that he hadn't. But, hey, that's an older brother for you.

Allyn has grown into a fine, very successful and amazing young man, but he will always be my Rock and Roll Baby. Through Jeffrey's illness, he was with us as much as he could be, though he had a very demanding position in DC. When the Doctors recommended that the best treatment for Jeff was a bone marrow transplant, Allyn was tested to determine if he was a match and would have gladly donated his marrow to save his brother. As it turned out, though, Brian was the better match. I think he was disappointed that he couldn't help his brother in this really personal and direct way.

Allyn took the loss of his brothers extremely hard. Once again, he finds himself an "only child". Still, he manages very well and continues with his very successful career. He makes me smile, and he makes me very proud.

Here's the thing ... there are so many leukemia and blood cancer patients in need of marrow matches who are not lucky enough to have siblings who may be a match. Even if they do have siblings, there is only a 1 in 4 chance that one may be a match. But you can help ... join the National Marrow Donor Program and BeTheMatch for someone in desperate need. The test is quick and painless, and you could save a life.

Thursday, March 24, 2011

"The Day the Music Died" ~ Don McLean

I named this blog "A Song for Everything ..." for a couple of reasons. I've just always so loved to sing! Don't misunderstand, I'm not a good singer, not even close. In fact, there are those who would say I can barely carry a tune. Still, I've always loved music and I always sang.

Our boys, Jeffrey and Brian, said that I had a song for everything! I guess that's because I always did. I started singing to them from the first moment I held them in my arms. We began with rock and roll lullabyes every night at bed time, and progressed from there. It seemed that, no matter the situation, I could summon to mind a song that, with a few minor tweaks of the words, fit the occassion perfectly. They would usually express their extreme annoyance with me by shouting loudly, "MOM - don't sing!" That was just a momentary blip in the screen, though, and I would continue in song. What most agitated them was my answering their questions in melody. There was one song that they found particularly offensive ... a very old country & western titled "Because, Just Because." One or both of them would ask if they could have something or go somewhere or do something, and if it didn't feel right to me, I would say "No." Of course, then came the incessant questioning, "Why, Mom? Why? Why, Mom?" I'm certain that anyone reading this who is a Mother or a Father has just known in your heart that what your child was asking for or about, wasn't in the best interest of your child, so you, too, said "No" without having an answer to "why" that could be easily articulated. When that happened with the boys, I would sing "Because, Just Because ... " After a couple of times through the song, they knew that further questioning would get them nowhere, since, in spite of their protestations and begging, I just continued to sing over them. They made a trade-off ... it was better in their minds to have my singing stop, than it was to have or do whatever they asked about. In the end, we both came out on top!

But, when we lost our boys, I stopped singing out loud. Guess that was "The Day the Music Died" for me. Oh, I still love music and have so many songs in my heart and head. I just don't sing them aloud anymore. So, instead, I'm going to share them with you, if you will let me, and tell the stories I have learned over the last several years ... stories of hope, love and courage prevailing over seemingly insurmountable odds. And in so doing, I hope to light your torch with the one handed me by Jeffrey and Brian ... to make leukemia your enemy, just as it is mine and many, many others. You see, together, we can find a cure for leukemia, but there is so much work to be done. Will you help in the fight? Visit Jeffrey's Voice  to learn more about the devastating effects of leukemia and blood cancers and our mission to find a cure.

Here's the thing ... thinking that when we reach the day that the world is free of this wretched disease, I'll be singing at the top of my lungs!!!!

Wednesday, March 23, 2011

So, now I'm a blogger!

The thing is, I've wanted to try this for quite a while, but could never seem to focus enough to actually sit down and do it!! I have so many stories to tell ... so many memories to share. Stories about my two beautiful and amazing young boys, Jeffrey and Brian, and the time we had together in this life. But most of all, I hope to convince as many as I can about the need for research into the causes of and cures for Leukemia. You see, because of Leukemia, we lost our two amazing young sons. And, just 18 months before our Jeffrey was diagnosed, I lost my very best friend to the same wretched disease. It's personal for me ... the fight against leukemia ... it's very personal.

I hope you will join in the fight. Please visit our website to learn about the mission of Jeffrey's Voice, a public charity created to fund research for a cure for Leukemia and Blood Cancers. Together, we can reach the day when no more are lost to these diseases, when all remissions are permanent, and when finally there is a cure for all.

Here's the thing ... together, we can reach the day when the world is free of Leukemia and Blood Cancers.